Research in our hospitals

Whether you are a patient, carer or simply a member of the east London community, we want you to be involved in our research so that we can make sure we are meeting the needs of our local community.

There are many ways you can help us with our research, from telling us if you don’t understand a question (you’d be surprised how helpful this is!) to making sure people are approached in the right way. You might be asked to help us make sure the research is reported in the right way or to join an advisory group. Whatever your role in helping with our research, you will be at the frontier of modern medicine helping us improve health both locally and across the world.

children's research team

How you can get involved

Barts Health Patient Advisers and Young person’s group members are always needed! Please contact the research nurses for more information on how to get involved.

If you'd like to find other opportunities to get involved in health and social care research, please visit the People in Research website: www.peopleinresearch.org/view-opportunities/

Payment for public involvement is offered for those in receipt of welfare benefits. The Involve information sheet for the public offers information about what to consider when offered paid involvement. This includes where to seek expert advice about how payment may affect your welfare benefits. It explains the context in which payment is offered and how public involvement in research is different from paid employment (especially important if you are receiving incapacity benefits) and also refers to sections of the Department of Work and Pensions staff guidance that addresses the regulations covering payment for ‘service user involvement’.

Information for professionals

For referrals or enquiries, please call the research nurse on 020 359 41455/41456.

Current research studies

To find out more contact the research nursing team: 0203 594 1455/1456

Study Description Speciality

Apo Pharma First

Deferiprone is a drug that acts to remove extra iron from the body. This study looks at the safety of and how effective deferiprone is in people with sickle cell disease or other anaemia with iron overload.

Haematology

Abbvie M11-290

We are trying to answer some questions about a medicine called Adalimumab. Adalimumab is a medicine given as a jab under your skin. We want to see if Adalimumab helps children with Ulcerative Colitis.

Gastro

Abbvie CAPE

The purpose of this study is to get safety information over a long period of time on your disease and medications that you received or are receiving for your Crohn’s Disease. 

Gastro

Breathing Together Study

Looking at the potential causes of asthma/wheezing by recruiting healthy new-borns. Includes samples and questionnaires.

Respiratory

ADDRESS 2

Registry for diabetic children to collect and compare information.

Endocrine

CACZ885X2206 (Canakinumab)

Sickle Cell study offering a new medication to establish effectiveness. Hopes to reduce number of crises.

Haematology

CAH

We want to try and find out if we can improve the way of giving medication to children with congenital adrenal hyperplasia (CAH) and to find more our about their condition to keep these individuals healthier. We also need healthy children as control group.

Endocrine

GOOS: Genetics of obesity study

Looking at the potential genetic causes of obesity. For those diagnosed with obesity under the age of 10. Requires one set of samples and a questionnaire.

Endocrine

ITP Registry

Registry for children with ITP. Collecting information with questionnaires to compare treatment/causes and outcomes.

Haematology

PREDNOS 2

We are trying to find out whether giving children prednisolone for six days every time they get a cold helps to prevent them from getting protein in their wee.

Renal

H2020 PIBD-SETQuality; the inception cohort and safety registry

In this study we want to collect data from patients with inflammatory bowel disease to get insight into how the disease develops and what the effect of treatment is. This allows us to examine which factors affect the disease and its treatment. Questionnaires will be completed.

Gastro

Shire319 Ulcerative Colitis

This medicine MMX® Mesalamine/ Mesalazine is being tested to see if it will make your ulcerative colitis better.

Gastro

SCAPE

Trial offering a new analgesia protocol for sickle cell patients experiencing crises.

Haematology

4D pharma Thetanix

Crohn’s disease patients in remission can receive a new probiotic treatment on this study to help establish effect.

Gastro

TRIAL NET

Screening for families of type 1 diabetics. Looking for autoantibodies that may indicate increased risk of diabetes.

Endocrine

Tummy UC

Questionnaire-based study for those with ulcerative colitis.

Gastro

Tummy CD

Questionnaire-based study for those with Crohn’s disease

Gastro

CHIPS - HIV

Collecting and sharing information between clinics in order to promote standardised high quality paediatrician-led care of all HIV-infected children in the UK and Ireland.

Infectious Diseases

Epipeg

The aim of this study is to determine the causes of epilepsy within this group of very young children (including new causes) and ultimately to get more information on which treatments work best for the different types of epilepsy in this age group.

Neurology

JUMP

 The idea of this study is to understand type 2 diabetes in children better by following up affected children over time. This will help us to understand what happens to children with type 2 diabetes, and to enroll them in studies for new treatments to try to either reverse or delay its progression.    

Endocrine

Spring

We do not fully understand why some babies are born early. The aim of this study is to find out if certain types of genetic changes are more common in babies who are born preterm.

Endocrine

PRED 4

This study is for patients who develop serious side effects from prescribed medicine to treat their ulcerative colitis and Crohn’s disease.

Gastro

 

CATCH-uS survey

A 5 minute NIHR Survey to map children and adolescents with Attention Deficit Hyperactivity Disorder in transition between children’s services and adult services ADHD services.

It should take no more than 5 minutes.

Complete the survey

 

Contact the children's research team

Research nurses
0203 594 1455/1456
mcrn@bartshealth.nhs.uk